Recently we have been facing some difficult decisions regarding Kid #2 and her disabilities. She is growing and moving around is getting trickier. She can walk some, but primarily uses a wheelchair at school and out and about. A decision needs to me made on how she will continue to ambulate. There are different opinions, different options, and different doctors.
For 5 weeks this summer, we will spend 15 hours a week at the hospital in an intensive summer therapy program. The goals are to get her on her feet, standing and walking, sitting and standing, brushing her teeth, feeding herself, getting dressed and moving her chair.
She works so hard. She does so well – all with a smile on her face. I can’t believe how much she does. When they bring her out she looks exhausted. She falls asleep in the car on the way home. We are so lucky to live so close with to the best children’s hospital in the country. I am blessed to have a kid that works so hard. She is a champ!!!